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June 2011 Family Newsletter

In this issue:

Calendar

FACEBOOK

2ND Annual Childhood Cancer Awareness Walk

Teen and young adult (TYA) news

Share your recipes/tips with other families

Member News

6TH Annual River Rafting with Wiley E Waters!

Extending our Hand to New Families

Summer Party 2011

Family Night at Sacred Heart Children's Hospital

Family Services

Recipe Corner with Pam Barberis

In Loving Memory

Calendar

Hospital Lunch - Thanks Senor Froggys and Italian Express and BrickHouse Massage and Coffee Bar

 

 

General Meetings - July Meeting is cancelled. Join us August 23 at 6:00 PM at Sacred Heart Childrens Hospital. Call 509-443-4162 for information

 

July 20 - Family Support Night at Sacred Heart

 

July 23 -Family Summer Party and Picnic

 

July 23 - Inland Empire Motorcycle Coalition Ride to benefit kids with cancer

 

August 11 - Teen and Young Adult Pool Party

 

August 13 - Josh Ashby Memorial Shoot

 

August 20 - Angel Flight Fly Day

 

August 27 - 2nd Annual Childhood Cancer Awareness Walk

 

September 1 - Teen and Young Adult Baseball Game

 

December 3 - SAVE THE DATE Annual Christmas Party/Reunion

FACEBOOK

 

 

 

We have a new facebook page with our new name American Childhood Cancer Organization Inland Northwest. The Candlelighters page will be going away. Please "like" us there and  re-load your photos to the new page.

2ND Annual Childhood Cancer Awareness Walk

Don't forget - T-Shirt orders are due in by August 5th.

 

Although pre-registration is not necessary to walk, we encourage families to pre-register to receive a t-shirt. It will also help us plan for food after the walk.

 

Registration form Link

Teen and young adult (TYA) news

Save the date for these upcoming teen events.

 

If you have any questions, contact Andrew Lainson

aglainson@gmail.com

Or Abby Lynde 

amberlynde@gmail.com

 

August 11 -

12 - 4 PM Pool Party

 

September 1 -  Spokane Indians Baseball Game

Share your recipes/tips with other families

Do you have any good advice on how to get kids to eat during chemo treatments and how to be sure kids on steroids are satisfied?

 

How about a favorite recipe that helps you manage your family's nutrition during stressful times?

Submit them to mruddis@accoinlandnw.org and we will share them as space allows in upcoming newsletters.

Member News

 

This is the place to share your news.

 

Every month we will choose one submission for publication.

 

Send your stories, tips, recommendations, trips, weddings, graduations, events, ~ anything you would like to share to: mruddis@accoinlandnw.org.

 

We can't guarantee we will be able to print everything but will do our best. Please send a photo along too,

 

 

The news can be personal or of general interest.


This month:

Check out this link about a new pediatric cancer research facility in Seattle.

 

Wedding News:

Congratulations to Heather Ingram (mom of Mailey - ALL survivor dx 2001) and Jason. They are getting married this Friday July 22 and our very own Christine Burge is officiating.

6TH Annual River Rafting with Wiley E Waters!

June 19th, 2011 the weather wasn't the best but it was still lots of fun. 6th Annual River Rafting pictures. Thanks Wiley E Waters for another fun year!

Extending our Hand to New Families

 

Four year old Braeden was diagnosed with ALL in July. Braeden likes to ride his bike and his favorite superhero is Spiderman. He lives in Post Falls with his mom and dad, April and Frank along with his siblings Danielle, Konnor and a baby brother expected any day.

 

Alicia is twelve years old. She was also recently diagnosed with ALL. Some of Alicia’s favorite activities are attending her church youth group and hanging out with her friends. She also likes to skateboard. Alicia lives in Tonasket with her mom and dad, Daniel and Brooke and her sisters Eva and Samara.

 

Shawnee is seven years old. Some of her favorite things to do are coloring and playing. Shawnee was diagnosed with Leukemia in June of this year. She lives with her mom Rachel and her siblings Makayla, Karl and Travis in Idaho.

 

Two year old Clara was recently diagnosed with Neuroblastoma this summer. Clara’s favorite color is pink and her favorite cartoon character is Mickey Mouse. Clara lives in Pasco with her mom and dad, Brian and Natasha and her brothers and sisters Chandler, Carson, Baden and Kate.

 

Zach is sixteen. He was diagnosed with AML in May. Zach and his mom and dad Tom and Dana are all from Montana. Some of Zach’s favorite activities include Football, Basketball, Track, Golf and playing his Xbox. He is a big fan of Notre Dame, Denver Broncos and LA Angels.

 

Lillian is one year old. She was diagnosed with ALL in June. Lillian lives in Montana with her mom and dad, Kelly and Sarah. Lillian likes to play with her blocks and shape sorter. She loves wheeling around in her walker, playing with any toys and eating ice cream.

Summer Party 2011

 

Saturday July 23, 2011

11:00 AM  - 4:00 PM

Summer Party

RSVP with child's names and ages to: ewilliams@accoinlandnw.org or office@accoinlandnw.org

or call 509-443-4162

You can also RSVP with Michaella in the office.

 

Games, lots of prizes, a jumping castle, a water slide, snow cones, lunch provided by Applebees, your favorite mascots, karaoke, and lots of fun.

 

At the end of the day, the Inland Empire Motorcycle Coalition will end their annual ride for kids with cancer at our party. There will be a motorcycle stunt show and parking lot rides! And don't worry - these are the good guy/gal motorcycle riders!

Family Night at Sacred Heart Children's Hospital

Family Support Night

 

We hope you can join us this Wednesday July 20

 

Mark your calendars for the upcoming months. Due to scheduling conflicts, October and December dates have changed.

August 17

September 21

October 12

November 16

December 14


Every third month, the parents/caregiver group will have an activity - this month: Authentic Movement - an exploration and reconnection to ourselves through movement.

 

RSVP is requested to plan for food: 509-474-2759

Email: mruddis@accoinlandnw.org

or to Maggie, Kim, or Nettie

 

Support from: SHCH,ACCOIN, RYPIEN FOUNDATION

Family Services

Information is empowerment. We offer a wide number of free publications for all families. Back to school is just around the corner. If you did not receive a copy of Educating the Child with Cancer and would like one, let us know.  office@accoinlandnw.org

Recipe Corner with Pam Barberis

 

Evan

Simple, good nutrition will help the entire family through the experience of caring for a child with cancer.  You can avoid some of the common complaints of treatment, such as constipation, with a diet rich in fruits, veggies and whole grains.  Small meals and snacks can be a great way to keep a patient interested in eating – try these cookies as a good start:

 

Oatmeal Raisin Cookies:

 

3/4 cup of whole wheat flour or brown rice flour

1/2 tsp of baking soda

3/4 tsp of vanilla

1/2 tsp of ground cinnamon

1/4 cup of unsweetened applesauce

1/3 - 1/2 cup of sugar or healthy substitute such as agave nectar

3/4 cup of dry oats

2 Tbs olive oil or coconut oil or flax oil

1/4 cup raisins

1 egg

1/4 cup of nuts or seeds (optional)

1/4 tsp of salt (optional)

 

Preheat oven to 350F. Prepare a cookie sheet either with non-stick spray or a parchment paper.

Sift the salt, cinnamon, baking soda (and salt if you are using) into the flour in a bowl.

In the mixing bowl, beat olive oil together with the sugar. Add in applesauce and egg and beat well. Now add in the flour mixture and beat on medium until a semi-stiff dough forms. This dough will be very slightly sticky. At this point, add the vanilla essence, raisins and nuts (if you are using) and mix well into the dough. This step will require a little more strength because the dough is pretty stiff due to the whole wheat flour. But just try to incorporate the raisins into the dough.

Drop by tablespoonful about 3 to a row. Flatten to about 3/4". Just keep in mind that this dough will barely flatten out when it's baking so what you see is what you get. Just don't flatten it too thin that it will turn out to be crunchy like a biscuit instead of crispy on the outside and chewy on the inside. You will probably get about 15 to a standard 9"x13" cookie tray. Bake in the center of oven for about 10-12 mins. When it's done, remove from cookie tray and cool on a rack. It is very good just out of the oven and still slightly warm!

Note:  The finished cookie will look "uncooked" on the inside but that's because of the color of the whole wheat flour together with the applesauce so don't be afraid to take a bite.

In Loving Memory

 Our hearts and prayers go out to all families struggling with the loss of their child.

 

Our Parent Bereavement retreat is scheduled for October 7, 8, 9 at St. Joseph's Family Center. More information coming soon.

 

If you would like to submit a memorial for our newsletter for your child, please email mruddis@accoinlandnw.org

American Childhood Cancer Organization Inland Northwest • PO Box 8031 • Spokane • WA • 99203
http://www.acco.org/inlandnw
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